Sunday, June 30, 2013

It's a Sunday Blog Hop!

It’s Sunday! ~ Welcome to Week #29 of Raising Imperfection!

It's your favorite post link party! Link your funny stories, best recipes, parenting successes, parenting fails, DIY projects and tips, photo bomb posts and more!

Please DO NOT link giveaways, other link parties or sponsored posts. This is all about a favorite post YOU have written! Then…come back for Feature Fridays! Leslie and I choose our favorite links from the link up and feature them!

If you missed the last features, you can see them HERE

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Say HELLO to your Co-Hosts for this week:

Becky - Alphabet Soup
Angela - My Personal Accent

Please also visit your co-hostess for the month of June:

Angel - Sew Crafty Angel

Be sure to visit Leslie and I for Feature Fridays to see if your post was picked to be featured!


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Friday, June 28, 2013

I am a Spoonie!

I found out something fantastic today, I am a spoonie! What is a spoonie? I guess it is someone like me, who suffers from a chronic illness, struggles with how to explain how they are feeling, and now subscribes to the “spoon theory.” 

This “theory” came into being when Christine Miserandino used the idea of spoons to explain her Lupus to a friend. She used spoons, (she was in a diner,) to represent the amount of energy each person has in a day. Each person is allotted a certain number of spoons for the day. Each task a person must do during the day expends energy, and therefore takes away a set number of spoons. If I only have ten spoons for the day and washing my hair will use two, maybe I'll decide to spend that energy, (or save those spoons) for a more pressing task, like grocery shopping. People with chronic illnesses that suffer from pain and fatigue have to make choices each day to decide how they will use their spoons. Overdo it, or borrow from tomorrows spoons, and there will be consequences. There are always consequences! For example, I remember telling my doctor how I was trying to exercise again but walking three miles, (which used to be no big deal,) had landed me on the couch for the next three days. I did not have enough spoons for that three mile walk and I stole from the upcoming days. Though unscientific, Christine Miserandino’s spoon idea has taken off internationally, probably because of its simplicity.

So why am I happy to be a spoonie? For almost a decade now, I have been plagued by an autoimmune disorder, but doctors have not pinpointed my exact diagnosis. There are indicators leaning towards Lupus, which is probably what they will decide on eventually, but in the meantime I have been in limbo. It is hard to explain your illness to others when you don't even have a name to give it! It is hard to make other people realize that you ARE sick when you look OK on the outside. Being a spoonie gives me an identity of sorts.

My day: broken, stiff, creaky & on the couch. 

Oddly enough, the people I've had the most difficulty convincing of my very real illness are my immediate family members. It is not so much that they do not believe me, they know I am sick, but they do not understand what I mean when I say I am tired. It is easy for the Hubs to forget I am sick when he sees me on the couch with the laptop while the sink is full of dishes and the laundry is piling up, waiting to be folded. Why can't I just get up and do it? Am I lazy? NO, I am sick. He knows, he really does, and he takes care of all of us when I can’t, but he gets frustrated occasionally. He forgets occasionally. My kids have never understood. They have only known me like this. They just want a mom that functions. They don't get why I have to stay home from their hiking trip, and they get upset when I have to say no to a visit to the park on a sunny day (hey, I'm upset too!) They are just little kids. Using the spoon theory, I can tell them I am out of spoons and they will “get it.” I am so excited to have a way to talk about my mystery illness with my family in a way everyone understands.

It may sound silly to some, using the energy/spoon analogy, but it is an easy way to explain to other people how you are feeling at any given time. I have never found such an easily understandable idea to explain my general lack of energy, and how draining every day activities are for me.

For more information on how the spoon theory came about, and to find out who is using spoons, you can read Christine Miserandino’s blog, But You Don't Look Sick, or this recent blog post from the BBC Internet radio show, Ouch.

Wishing you all lots of spoons! I'm off to bed so I do not run out tomorrow.